Research
A student-led research project
We are collecting qualitative and quantitative evidence on how Type 1 Diabetes is diagnosed and treated across Indonesia, so that recommendations can be based on lived experience.
Objectives
- •Measure the typical interval between first symptoms and diagnosis.
- •Identify how often children present in diabetic ketoacidosis.
- •Map reported barriers to obtaining insulin by region.
- •Document school and community support experiences.
Research questions
- •Why are Indonesian children with T1D frequently undiagnosed or misdiagnosed?
- •Which factors most strongly predict a delayed diagnosis?
- •What practical barriers limit continuous access to insulin?
- •Which interventions would families prioritise?
Methodology
A mixed-methods design: an anonymous online survey open to people with T1D and their caregivers across Indonesia, followed by voluntary semi-structured interviews. Responses are analysed descriptively by region, with interview transcripts coded thematically. Published literature and organisational reports provide context.
Ethics and privacy
Participation is voluntary and may be withdrawn at any time. The survey is anonymous unless you choose to leave an email for interview follow-up. We never publish identifying details without explicit permission, we do not sell or share data with third parties, and stories are reviewed before publication. This project is educational and does not provide medical advice.